February 16, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

Holden’s rock climbing abilities:

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For those who don’t follow my personal page, you may be missing your fill of Holden pictures. We’ve been having a busy summer so far, with lots of outside play. Recently we’ve added occupational therapy to Holden’s team of people, to help him overcome some of his sensory issues. Our biggest one will be to […]

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Something to think about for our little buddy. https://thehill.com/blogs/congress-blog/healthcare/394425-we-cant-go-back-to-the-dark-days-of-discrimination-based-on-a

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Definitely Holden.

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I haven’t posted any pictures of Holden in awhile, or an update. About 2 weeks ago Holden woke up head-to-toe purple, with dark blue lips. He wasn’t in respiratory distress, but it was concerning, so I brought him into the pediatrician. Everything looked fine, and even his color had returned to normal by the time […]

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Here is one of Holden’s CHDs. #savetheheartbeat

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https://themighty.com/2018/05/pediatric-nurse-spongebob-scrubs-heart-surgery-chd/ <3

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https://www.scientificamerican.com/article/reprogrammed-stem-cells-approved-to-mend-human-hearts-in-pilot-study/ Interesting. We have no idea what will be available to Holden in the future.

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2 years ago today, Holden came home from his 3 week stay in the PICU. At the time, I couldn’t imagine staying any longer than that, and I still can’t, but now I have met many parents who have had to stay so much longer. My heart and prayers go out to them. We had […]

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2 years ago today Holden received his first life-saving open heart surgery! So, of course, where did we go to celebrate? Chick-fil-A! Eat that rainbow sprinkled ice cream, buddy. You’re our hero. Holden’s our little miracle, and we’re so thankful to the doctors and nurses who have been there with him. We pray for you […]

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