April 24, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

Holden had a cardiology appointment today, along with an echocardiogram (echo). His echo looked great, and so we won’t see the cardiologist again for nine months! Also, big news: once he finishes his bottle of enalrapril, he’s off of it until one day when he may need it again! His valves are no longer leaking […]

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Here’s a picture of Holden, his scar, and a ridiculous selfie of us, just to say that we heard back from Walgreens that we qualified for aid to pay for 2/3 of his next synagis shot (for RSV), which is great, bc Holden’s still fighting some major congestion. So, I don’t know if anyone out there was […]

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We’ve had a busy start to the new year. We packed up and said good-bye to our old house and we’re staying with family until our new house is ready. We only moved 20+ miles up the road, closer to our church, family, and the hospital. Holden, Corbyn, and I are sick at the moment, […]

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Happy Christmas Eve! Today is 2 months since Holden’s surgery. We are thankful to have that behind us, and to have a strong and healthy boy. As we go into Christmas, I want to thank everyone for your prayers for him this year. We certainly could not have had the peace that we did without […]

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Today, Holden turned 20 months! We can’t believe he’ll be 2 in four short months! When Corbyn was this age, we were preparing for Holdy-boy to be born.

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Here are a few pictures too cute to keep from Holden’s fan club. Holden received his first Synagis vaccine (for the season) today. It’s designed to help build his immune system in case he gets RSV. RSV can be deadly for heart healthy babies, but especially for heart heroes like Holden. So we’re thankful that […]

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Holden had an eye appointment today. As of now, he does not need surgery, and he does not need glasses. 🙌🏼 Also, I wanted to share Corbyn’s Christmas devotional today (by Ann Voskamp). One of the questions I posed to Corbyn today was “would you give up everything here, trusting that God has called you […]

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Holden had his cardiology appointment today. He’s doing so well! Aaaannnd, we’re off of Lasix!! 🎉🎉

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The day after Thanksgiving marked exactly one month since Holden’s surgery. This Tuesday he sees his cardiologist, and hopefully says good-bye to Lasix (diuretic meds) forever. One really would not know that his oxygen saturation hangs in the 80s. We thought he would slow down, but in fact, he has sped up. Today was an […]

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