June 17, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

1 year ago today we were in an hours long appointment to prepare for Holden’s 2nd open heart surgery. Tomorrow will be his heartiversary. We were nervious, but on the day of surgery we felt an immense peace that can only be given by God. Today Holden is our busy boy. Since last year he […]

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Yesterday was World Heart Day, and we celebrated down in Canaan Valley. It’s hard to believe that we’re almost at Holden’s 1 year mark from his 2nd surgery! Holden’s doing really well. He’s rough and tumble, eats most things, and most recently, he’s talking up a storm!

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Holden’s Beads of Courage. Every bead represents a surgery, procedure, test, poke, hospital visit, etc. He almost fills 3 whole strands, and counting. #warrior #beadsofcourage #holdengraham #chd

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For those who don’t follow my personal page, you may be missing your fill of Holden pictures. We’ve been having a busy summer so far, with lots of outside play. Recently we’ve added occupational therapy to Holden’s team of people, to help him overcome some of his sensory issues. Our biggest one will be to […]

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I haven’t posted any pictures of Holden in awhile, or an update. About 2 weeks ago Holden woke up head-to-toe purple, with dark blue lips. He wasn’t in respiratory distress, but it was concerning, so I brought him into the pediatrician. Everything looked fine, and even his color had returned to normal by the time […]

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2 years ago today Holden received his first life-saving open heart surgery! So, of course, where did we go to celebrate? Chick-fil-A! Eat that rainbow sprinkled ice cream, buddy. You’re our hero. Holden’s our little miracle, and we’re so thankful to the doctors and nurses who have been there with him. We pray for you […]

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The long awaited video (about a month late) of Holden throwing away his main heart medication (Enalapril) that he had been on since he was two weeks old!

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Holden had his 2 year well-child check up today and is doing great! His percentile in height is the best it’s ever been. Pictured are also moments from yesterday when I found him playing with his tool set. Check out those fine motor skills. He looks just like Daddy! Also, I’m having technical difficulties with […]

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Happy 2nd Birthday to Mr. Holden Graham! Our chubby bubby always keeps us hopping. He loves his sister, and when she cries, he’s the first one to run over to hug and kiss her. He’s also SO inquisitive. If there’s something electronic, he must figure it out. We can only hope that means he’ll have […]

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Happy Easter from Holden! ❤

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