August 20, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

1 year ago today we were in an hours long appointment to prepare for Holden’s 2nd open heart surgery. Tomorrow will be his heartiversary. We were nervious, but on the day of surgery we felt an immense peace that can only be given by God. Today Holden is our busy boy. Since last year he […]

READ MORE

2 years ago today, Holden came home from his 3 week stay in the PICU. At the time, I couldn’t imagine staying any longer than that, and I still can’t, but now I have met many parents who have had to stay so much longer. My heart and prayers go out to them. We had […]

READ MORE

If Holden had a real phone, he’d call all his favorite nurses to say “Happy Nurse’s Week!” But since he doesn’t, we’ll post this throwback and say that we appreciate all of our former nurses and our nurse friends! Have a wonderful week! We hope you are spoiled with too many goodies!

READ MORE

Exactly 2 years ago today Holden wasn’t “acting quite right” and so I made an appointment at the pediatrician’s office. From there, we were told to keep him calm until the ambulance arrived. It seemed like forever before it came, and it was the longest ride from Bridgeport to Morgantown I’d ever taken. At the […]

READ MORE

  I was looking through some old pictures of Holden’s 1st visit to the PICU today, just to say that we’ve collected 12 snuggapuppies so far! I bought Holden’s for him during that visit, at 2 weeks old, and it has been with him since. I can’t wait to bless more babies with this soothing […]

READ MORE

  A year ago today, we almost lost Holden when the doctors attempted to slow his heart for a CT scan, and he went into cardiac arrest. He spent the night, and his 1st birthday in the hospital. Fortunately today we celebrated his 2nd birthday with family and friends. Last year we brought home a […]

READ MORE

Our memory from last year. Fitting we spent the afternoon in a gym!

READ MORE

To kick off CHD week, here’s Holden just days before being sent to the hospital and discovering he has CHD, Holden in the Hospital at 2 weeks old, waiting for open heart surgery; and then Holden now. It’s been a long and unimaginable road. He’s so strong and such a fighter.

READ MORE

Happy New Year! 2017 was a long year for our family. At the beginning of the year we thought Holden would have surgery then, and then the great wait began. In February he had the cath done, and we had to stay over night because of complications. At the same time my sister had a […]

READ MORE

This was Holden last year. 😊🎄

READ MORE