March 23, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart
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More pictures from Spring Mills Primary. Photo cred to Lisa and Alanda. We’re hoping to get more involved with Jump Rope for Heart in our area. The more awareness and funds that are raised, the more money goes to research ways to extend Holden’s life. We have cars that can drive themselves. Why can’t we […]

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We had such a great time today at Spring Mills Primary! Holden was the subject during their school’s Jump Rope For Heart for the students to gain an understanding as to why they raise the money. Their school raised over $16k for the American Heart Association! Thank you to my friend, and former Co-worker, Lisa […]

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❤ We’re already in heart month, but Feb 7-14 is CHD Awareness week. ❤ Before Holden’s diagnosis, the only thing I knew about heart defects is that some babies may have a hole that closes over time, and that some people have a murmur (which I didn’t fully understand the extent of what that even […]

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Calling all crocheters and knitters, if you would like to whip up some red hats for the NICU babies born in February, which is CHD awareness month, I will be sure to get them to WVU Children’s Hospital’s NICU and L&D. It would be good to make them in different sizes— some preemie, and some […]

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These are Heart Walk pictures from Dustin’s camera. #heartwalk

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The heart walk was a success! Today was a perfect day to walk around the Black Bears Stadium. We were able to hear from a young woman who’s beginning heart story sounded much like Holden’s, except with different defects. There were heart warriors of all ages, as well as those who walked in memory of […]

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  I think Fall has officially come to WV! Do you know what else is quickly approaching? The Morgantown Heart Walk! This Saturday we’ll be walking to raise money and awareness for heart research that will lead to helping our little pumpkin become a big, old, gray, 6′ tall pumpkin! We’re $100 from our fundraising […]

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Thank you to everyone who has donated to the heart walk so far!! I’ve raised my half, now Dustin needs a boost to get him to his half! Link to Dustin’s #heartwalk page: http://www2.heart.org/site/TR?fr_id=2380&pg=personal&px=6814374 Holden’s practicing his wagon riding skills for the big day. Also, if you’re a local, Holden will be in the WVU […]

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I’m posting Dustin’s #heartwalk link too, because we each set a goal of $250, and so I don’t want him to be short-changed (see what I did there?)! http://www2.heart.org/site/TR?fr_id=2380&pg=personal&px=6814374

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