April 24, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

An update on our busy little guy: Holden’s cardiologist called us yesterday evening to say that the surgical team has concluded on their recommendation for surgery, based on the diagnostic heart catheterization done last week. We were a little surprised because we weren’t expecting an answer until Holden’s next cardiology appointment in April; (actually, we […]

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I found out about this book today. Yes, I will definitely be reading it.

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Holden had his eye appointment this morning. The doctor said that he has “Duane’s Syndrome,” not to be confused with “Dwayne Wayne,” but both guys are pretty fly. So the doctor said he’ll just keep an eye on it and see how it develops. He said that most of the time it stays the same. […]

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This is an old photo, but I think it’s appropriate for CHD Awareness Month because it shows his “zipper” scar and his fighter personality.

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February is CHD Awareness Month. If you feel led, you could donate to an organization that raises money for research for, or for families with a child with CHD; or donate to your local pediatric cardiac intensive care unit. For Holden’s birthday, we plan to raise money for WVU Children’s Hospital’s cardiac unit.

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