April 25, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart
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I seriously love cross-country so much, and this article solidifies why it’s such a great sport with a wonderful brand of kids. <3 Just try not to cry when you read about this runner with CHD. https://ovalsandtrails.com/blog/2018/10/19/the-runner-with-the-broken-heart

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<3 https://wvumedicine.org/news/article/wvu-medicine-announces-plans-to-offer-heart-transplants

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<3 <3 https://www.achaheart.org/blog/2018/miss-west-virginia-the-paradox-of-my-chd

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I came across this article today, posted by 2 other moms who have also spent their fair share of time in the hospital with their tiny miracles. <3 The Medical Mom.

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Something for our Child Life Coordinators to think about… you know who you are. 😉

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I’m Not Strong, I’m Just a Heart Mom

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Something to think about for our little buddy. https://thehill.com/blogs/congress-blog/healthcare/394425-we-cant-go-back-to-the-dark-days-of-discrimination-based-on-a

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Here is one of Holden’s CHDs. #savetheheartbeat

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https://www.scientificamerican.com/article/reprogrammed-stem-cells-approved-to-mend-human-hearts-in-pilot-study/ Interesting. We have no idea what will be available to Holden in the future.

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