February 16, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

  Holden has been doing good today. He’s basically wireless except for the monitors. He was able to take a wagon ride to the play room where he found a ride-on car, so we took several strolls around the PICU. While in the play room he walked around to get his land legs back. Overall, […]

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Holden is the Mack Daddy of pre-op. The testing part wasn’t easy, but by the time the surgeon came, Holden was happily eating and playing in his Paw Patrol robe, killing it. If you want to see the exact model (to scale) of Holden’s heart, there it is. The white one shows blood flow. The […]

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The heart walk was a success! Today was a perfect day to walk around the Black Bears Stadium. We were able to hear from a young woman who’s beginning heart story sounded much like Holden’s, except with different defects. There were heart warriors of all ages, as well as those who walked in memory of […]

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We’ve been given our marching orders for Monday and Tuesday (surgery day). Monday afternoon will certainly be long and unenjoyable. Holden will have a chest x-ray, blood-work, a cardiology appt with the surgeons, meeting with the anesthesiologist, and all the other fun stuff during his nap time. Then we will go home and bite our […]

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I just have to take a minute to brag on the women in my life right now. Many of my friends have offered to, and already have taken care of Corbyn, picking her up from school, watching her, feeding her, and showing her love. Yesterday, my friend (on her birthday no less) made Holden that […]

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Thank you to everyone who has donated to the heart walk so far!! I’ve raised my half, now Dustin needs a boost to get him to his half! Link to Dustin’s #heartwalk page: http://www2.heart.org/site/TR?fr_id=2380&pg=personal&px=6814374 Holden’s practicing his wagon riding skills for the big day. Also, if you’re a local, Holden will be in the WVU […]

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Last week we heard from the surgeon. They still don’t have the 3D model of Holden’s heart, but he did say that October is wide open for surgery dates. He didn’t want to nail down a date yet. They should have the model by the 20th, and once they have a chance to look it […]

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Thanks to our Stella & Dot donation money, we were able to donate the “I Heart You, Too” print of Tula baby carriers to the PICU, and thanks to Baby Tula and Kara Glenn, a Free-To-Grow Tula and several Tula baby blankets were also donated. Kara (far left) donated her time to demonstrate to the […]

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We are heading home! Now the next step is finding out which surgery Holden will have. We really appreciate all of your prayers. We believe that your prayers assisted in an uneventful day. Praise God for his mercy and faithfulness. Please remember to keep Gabriel in your prayers. As far as I know, he’s not […]

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They just took him back, so now’s a good time to get the prayer on. Thanks to Child Life for keeping him happy when he’s hungry and frustrated! #childlife

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