April 24, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

Something for our Child Life Coordinators to think about… you know who you are. 😉

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The long awaited video (about a month late) of Holden throwing away his main heart medication (Enalapril) that he had been on since he was two weeks old!

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A before/after diagram of his change in anatomy.

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Good morning! Holden slept from 9:45pm to around 12:15am and 12:30am to about 6:00am!

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Holden cruising around the PICU earlier today. Surgery two days ago? No big deal… let’s roll!

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I had to get buddy man back to sleep after being woken up from people cleaning the room next to ours… He turned over and was up on all fours (he is a wild man). Long night ahead? We shall see…

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A little warrior in action! This was Holden a few hours after coming home from the PICU. He was giving it his all — with shaky legs and a wobbly balance. His determination was inspiring to watch. Holden spent the entire evening trying to walk as well as he used to. (Compare this to the […]

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