April 6, 2020
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

1 year ago today we were in an hours long appointment to prepare for Holden’s 2nd open heart surgery. Tomorrow will be his heartiversary. We were nervious, but on the day of surgery we felt an immense peace that can only be given by God.

Today Holden is our busy boy. Since last year he has come a long way with his eating, speech, and sensory aversions. We’re so thankful to all who have prayed for him, for his doctors and nurses, and for his Birth to Three interventionists.

Ask Holden if he has any setbacks or low O2 sats. He won’t know what you are talking about, and he’ll continually make you take a double-take when you see his heart, and then see how active he is.



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