April 26, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

This is a really neat story about a WVU football player and his heart for sick kids. One of our favorite Child Life Specialists makes a cameo as well. šŸ™‚ <3 #LetsGoMountaineers <3Ā <3

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Something for our Child Life Coordinators to think about… you know who you are. šŸ˜‰

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Holden and Corbyn are soaking up our last days of summer break. Yesterday we attended a fundraiser kick-off for WVU Children’s Hospital, with a luau theme that was a blast, and then they enjoyed their new bubble guns in the backyard, before bed time. For those who may be wondering, we’ll be delivering the snuggapuppies […]

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Iā€™m Not Strong, Iā€™m Just a Heart Mom

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Holden, heart warrior, conqueror of the beach and all the sensory aversion it may bring.

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Dr. Shaw, Holden would love this, just saying… šŸ™‚

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Holden’s rock climbing abilities:

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For those who don’t follow my personal page, you may be missing your fill of Holden pictures. We’ve been having a busy summer so far, with lots of outside play. Recently we’ve added occupational therapy to Holden’s team of people, to help him overcome some of his sensory issues. Our biggest one will be to […]

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