July 22, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

I haven’t posted any pictures of Holden in awhile, or an update.

About 2 weeks ago Holden woke up head-to-toe purple, with dark blue lips. He wasn’t in respiratory distress, but it was concerning, so I brought him into the pediatrician. Everything looked fine, and even his color had returned to normal by the time we went in (about 2 hours after awaking). The next morning he was purple again, but same as before, he was completely normal.

So fast forward to Tuesday, he went into the hospital for an echo. They scanned him several times, and everything looked as it should. They don’t know why he’s been turning purple all of a sudden, but there seems to be nothing that needs done.

More recently, I read on a heart mom’s FB group that many parents experienced that between the Glenn and the Fontan were their heart warrior’s bluest times, and that as they got bigger and closer to the time of the Fontan, they were more often blue.

Funny story about Holden’s echo is that even though he hates them with a passion, (Jill from Child Life was able to work her bubble/iPad magic long enough for the many times they scanned him with the Doppler), when it was time to get up from the chair, he jumped up and danced. Then he skipped his way around the corner for a prize, and then skipped and frolicked his way all the way out of the hospital, grinning ear-to-ear.

All that to say, yes, he sure likes to scare us, but he’s doing well, and he’s staying very busy!



Leave a comment

%d bloggers like this: