April 26, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

2 years ago today, Holden came home from his 3 week stay in the PICU. At the time, I couldn’t imagine staying any longer than that, and I still can’t, but now I have met many parents who have had to stay so much longer. My heart and prayers go out to them. We had […]

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2 years ago today Holden received his first life-saving open heart surgery! So, of course, where did we go to celebrate? Chick-fil-A! Eat that rainbow sprinkled ice cream, buddy. You’re our hero. Holden’s our little miracle, and we’re so thankful to the doctors and nurses who have been there with him. We pray for you […]

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https://themighty.com/2016/07/congenital-heart-defects-what-parents-want-you-to-know/ This.

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If Holden had a real phone, he’d call all his favorite nurses to say “Happy Nurse’s Week!” But since he doesn’t, we’ll post this throwback and say that we appreciate all of our former nurses and our nurse friends! Have a wonderful week! We hope you are spoiled with too many goodies!

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Exactly 2 years ago today Holden wasn’t “acting quite right” and so I made an appointment at the pediatrician’s office. From there, we were told to keep him calm until the ambulance arrived. It seemed like forever before it came, and it was the longest ride from Bridgeport to Morgantown I’d ever taken. At the […]

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The stuffed animals donated go to patients and siblings of patients during their stay in the PICU. Corbyn was the recipient of several during Holden’s first stay. It was kind of neat for Corbyn because she was not yet 2 years old, and her mom and baby brother were suddenly gone from the home one […]

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We Need to Talk About PTSD in NICU Parents Fitting that I came across this article on the 2nd anniversary of Holden’s ambulance ride, initial PICU stay, and CHD diagnosis.

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