August 26, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

The long awaited video (about a month late) of Holden throwing away his main heart medication (Enalapril) that he had been on since he was two weeks old!

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https://www.huffingtonpost.com/entry/nurses-colorful-dry-erase-art-cheers-up-kids-at-texas-childrens-hospital_us_58ecfb72e4b0ca64d9198e6f?ncid=fcbklnkushpmg00000023 WVU’s PICU has characters painted on the glass doors, but this is pretty cool too!

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Holden had his 2 year well-child check up today and is doing great! His percentile in height is the best it’s ever been. Pictured are also moments from yesterday when I found him playing with his tool set. Check out those fine motor skills. He looks just like Daddy! Also, I’m having technical difficulties with […]

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Hey everyone, the month is almost over! If you’re thinking about donating either a snuggapuppy and/or a CHD Lovey, please do! The month of April is almost over!! We’ve collected 15 snuggapuppies and 7 CHD Loveys. Although that’s awesome to donate, I’d love to give more! Thank you to all who have already donated! Recently […]

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https://www.huffingtonpost.com/entry/dolls-get-donated-limbs-from-other-toys-to-teach-kids-about-transplants_us_5734d1f4e4b060aa7819a6ed?ncid=fcbklnkushpmg00000023 This is kinda neat

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New guidance issued for treating cardiac arrest in children with heart disease

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  I was looking through some old pictures of Holden’s 1st visit to the PICU today, just to say that we’ve collected 12 snuggapuppies so far! I bought Holden’s for him during that visit, at 2 weeks old, and it has been with him since. I can’t wait to bless more babies with this soothing […]

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Happy 2nd Birthday to Mr. Holden Graham! Our chubby bubby always keeps us hopping. He loves his sister, and when she cries, he’s the first one to run over to hug and kiss her. He’s also SO inquisitive. If there’s something electronic, he must figure it out. We can only hope that means he’ll have […]

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  A year ago today, we almost lost Holden when the doctors attempted to slow his heart for a CT scan, and he went into cardiac arrest. He spent the night, and his 1st birthday in the hospital. Fortunately today we celebrated his 2nd birthday with family and friends. Last year we brought home a […]

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