March 21, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

https://www.healthline.com/health/heart-disease/colby-groom-wine-heart-research#16 This is an interesting way to spread awareness and raise money for research— wine.

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One of Holden’s CHDs

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Our memory from last year. Fitting we spent the afternoon in a gym!

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We had such a great time today at Spring Mills Primary! Holden was the subject during their school’s Jump Rope For Heart for the students to gain an understanding as to why they raise the money. Their school raised over $16k for the American Heart Association! Thank you to my friend, and former Co-worker, Lisa […]

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To kick off CHD week, here’s Holden just days before being sent to the hospital and discovering he has CHD, Holden in the Hospital at 2 weeks old, waiting for open heart surgery; and then Holden now. It’s been a long and unimaginable road. He’s so strong and such a fighter.

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Today is the beginning of CHD Awareness week! ❤ Wear all the heart stuff you own from now until Valentine’s Day to show your support for Holden and others affected with CHD.

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❤ We’re already in heart month, but Feb 7-14 is CHD Awareness week. ❤ Before Holden’s diagnosis, the only thing I knew about heart defects is that some babies may have a hole that closes over time, and that some people have a murmur (which I didn’t fully understand the extent of what that even […]

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When Holden first started showing signs of heart failure, I didn’t know what was going on, and especially didn’t know he had CHD. My first indicators that there was a problem was his appearance and temperature, and then over the weekend his energy and feeding dropped. By Monday all of the indicators were present, except […]

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We wore our red today for heart disease awareness day.

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