June 5, 2020
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

When Holden first started showing signs of heart failure, I didn’t know what was going on, and especially didn’t know he had CHD. My first indicators that there was a problem was his appearance and temperature, and then over the weekend his energy and feeding dropped. By Monday all of the indicators were present, except that I didn’t know his heart rate. If we hadn’t gone to the doctor, we would have lost Holden that day. So, feel free to share this with anyone and everyone.



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