September 21, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

Holden had an amazing adventure today. He touched the moon, flew an airplane, rolled in grass at the National Mall, and most importantly to him, got to play with a hose that blew air!

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Holden had a cardiology appointment today, along with an echocardiogram (echo). His echo looked great, and so we won’t see the cardiologist again for nine months! Also, big news: once he finishes his bottle of enalrapril, he’s off of it until one day when he may need it again! His valves are no longer leaking […]

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Just a few cute pictures from our week. Holdy-man had a haircut today and is looking sharp.

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A photo drop of our morning at the playground yesterday when it was nice, and then today when it deluged. 🌤🌧☔

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I forgot to post a picture of Holden on Valentine’s Day! Here he is in his cute little man heart shirt. CHD Awareness week may have come and come, but we still have some time left in heart month! ❤

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This totally isn’t a commentary on not finding out about Holden’s until later. However, if insurance covered a fetal echo (therefore practitioners urging to do so) for every expecting mother, we wouldn’t have as many scary moments or even deaths of our newborns with CHD. There’s definitely a lot you can’t see in a regular […]

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More pictures from Spring Mills Primary. Photo cred to Lisa and Alanda. We’re hoping to get more involved with Jump Rope for Heart in our area. The more awareness and funds that are raised, the more money goes to research ways to extend Holden’s life. We have cars that can drive themselves. Why can’t we […]

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