November 12, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

Here’s a picture of Holden, his scar, and a ridiculous selfie of us, just to say that we heard back from Walgreens that we qualified for aid to pay for 2/3 of his next synagis shot (for RSV), which is great, bc Holden’s still fighting some major congestion. So, I don’t know if anyone out there was praying about that, but thank you if you were. He was about to go full John Travolta and be the boy in the bubble.

Also, Holden’s been handling his congestion like a champion. At best his oxygen is at 87%, and yet with congestion added, he and Corbyn have been doing laps around the house.

Heart month is just around the corner, so stay tuned, I’m brainstorming some ideas on how to spread awareness about CHD.



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