December 11, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

With Heart month just around the corner…

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We’re banking on Holden making the big bucks as an engineer one day so Mommy and Daddy can live in the nice nursing home. (BTW, this is the charger for the batteries of his beloved puppy).

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Last post for the day. I found this info true even for parents who don’t have a child with a disability.

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Here’s a picture of Holden, his scar, and a ridiculous selfie of us, just to say that we heard back from Walgreens that we qualified for aid to pay for 2/3 of his next synagis shot (for RSV), which is great, bc Holden’s still fighting some major congestion. So, I don’t know if anyone out there was […]

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9 Things You Need to Make It Through Your Child’s Open-Heart Surgery These are pretty true to my experience too. I’ve run 3 full marathons, but I’ve never been so exhausted and ready to pass out as I did the day I saw Holden post-op for his first OHS. I’ve also never been so assertive […]

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Holden got a new drill and it made his cabin-fevered self very happy!

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Maybe I’m the only one who’s sick…

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We’ve had a busy start to the new year. We packed up and said good-bye to our old house and we’re staying with family until our new house is ready. We only moved 20+ miles up the road, closer to our church, family, and the hospital. Holden, Corbyn, and I are sick at the moment, […]

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Happy New Year! 2017 was a long year for our family. At the beginning of the year we thought Holden would have surgery then, and then the great wait began. In February he had the cath done, and we had to stay over night because of complications. At the same time my sister had a […]

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