April 26, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

Happy Christmas Eve! Today is 2 months since Holden’s surgery. We are thankful to have that behind us, and to have a strong and healthy boy. As we go into Christmas, I want to thank everyone for your prayers for him this year. We certainly could not have had the peace that we did without […]

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This was Holden last year. 😊🎄

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Please Understand PTSD Is a Reality for Some of Us Who Parent Medically Fragile Kids

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Today, Holden turned 20 months! We can’t believe he’ll be 2 in four short months! When Corbyn was this age, we were preparing for Holdy-boy to be born.

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This is one of Holden’s defects. #savetheheartbeat

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Here are a few pictures too cute to keep from Holden’s fan club. Holden received his first Synagis vaccine (for the season) today. It’s designed to help build his immune system in case he gets RSV. RSV can be deadly for heart healthy babies, but especially for heart heroes like Holden. So we’re thankful that […]

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Holden had an eye appointment today. As of now, he does not need surgery, and he does not need glasses. 🙌🏼 Also, I wanted to share Corbyn’s Christmas devotional today (by Ann Voskamp). One of the questions I posed to Corbyn today was “would you give up everything here, trusting that God has called you […]

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  Here are a few pictures we had taken before Holden’s surgery. Rachel Matlick Photography took some great pics!

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