November 15, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

Holden wanted to dazzle his fan club tonight with his floor routine. 😂 He was very proud and continued to do it all evening, attempting to do some somersaults. Mommy will not be aiding him in any stunts until he’s off sternal precautions, so for now he’ll have to continue to figure it out, as […]

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Holden had his cardiology appointment today. He’s doing so well! Aaaannnd, we’re off of Lasix!! 🎉🎉

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#givingtuesday #heartheroes

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The day after Thanksgiving marked exactly one month since Holden’s surgery. This Tuesday he sees his cardiologist, and hopefully says good-bye to Lasix (diuretic meds) forever. One really would not know that his oxygen saturation hangs in the 80s. We thought he would slow down, but in fact, he has sped up. Today was an […]

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We are so thankful for this guy being with us today. We’re also thankful for all of you who pray for our family. Holden is thankful for pumpkin pie. Happy Thanksgiving!

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I’m so proud of this guy today! You may not know from looking at him, but we really struggle with him at meal times. He has a sensory aversion to certain foods and therefore he eats very few table foods. Today, after eating half of a pumpkin roll slice for 2nd breakfast, he ate several […]

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Our wild man doesn’t care that he just had heart surgery.

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Holden knows how to look cool when you’re freezing your butt off. 😎

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Calling all crocheters and knitters, if you would like to whip up some red hats for the NICU babies born in February, which is CHD awareness month, I will be sure to get them to WVU Children’s Hospital’s NICU and L&D. It would be good to make them in different sizes— some preemie, and some […]

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Shhh… don’t tell Corbyn that little brother sat in her booster chair for lunch today. #19monthsold #westillneedatray #waytoomessy

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