November 12, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

Holden is home and happy to be with his toys and the whole family together. On the way into the house he said hi to his swing and went around touching every toy. He only wished it wasn’t raining because he misses being outside.

Please pray that tonight goes well. He has several medications, all at different times, that we have to remember. Plus, Holden’s body is still adjusting to his new anatomy, and pain management.

Also, pray for Corbyn because today has been exciting and challenging for her too. One of our concerns is that, a) she doesn’t accidentally hurt Holden when they bicker, and b) that she doesn’t feel like we’re playing favorites when we give more slack to Holden right now. Moreover, Holden is a danger to himself. Imagine bringing home an 18 month rough-and-tumble boy who’s chest has been cracked open and wired shut, and then letting him loose in the house. We thought the house was okay, but everything now looks like a bludgeoning tool. We followed him around like he’s brand new. So we need prayers to not be super helicopters, and also that he doesn’t hurt his fresh wounds.

Thank you everyone!



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