November 12, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

Here’s a couple excerpts from the book, “The Lucky Few,” by Heather Avis. I highly recommend this read if you are a heart mom, mom of a child with Down syndrome, adoptive mom, or if you just like a good read! I started following Heather on Instagram because she has 2 children with CHD. They also happen to have down syndrome and are adopted. October is Down Syndrome Awareness Month. The author is such a great advocate for her children.

There’s many moments in this book that I hope I can achieve. By their son’s heart surgery, which was their 2nd experience with it, they didn’t even feel scared any more. As we approach Holden’s 2nd surgery, I don’t know that I’m there yet.




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