November 15, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

I love it when I catch them playing together on their own (unprompted).

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I haven’t posted in awhile, so here’s Holden strolling with his girl on a Friday night.

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#savetheheartbeat

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I meant to post these pictures yesterday. A year ago I posted that he was 6 weeks post-op. I love that picture because he looks like a fighter. These days he’s unstoppable. Update on the CT scan reschedule is that there is no update, ha! We’re still waiting to hear from the team. Please pray […]

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Thanks again to everyone who contributed! Your efforts were not gone unnoticed.

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Trying to get a picture with this cranky/silly, teething boy, you never know what you’re going to get.

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A little heart humor. #savetheheartbeat

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Hi folks, Today I received a call that Holden’s surgeon had a personal matter come up, and so Holden will not have the CT scan this Wednesday. It will be rescheduled another date. I will keep you all posted as I know more. Thank you all for your ongoing prayers.

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Holden’s certainly our busy boy these days. It’s hard to believe that he was almost taken from us about 2 months ago. He’s our little superhero. This Wednesday, 6/14, Holden will be back in the hospital for another attempt at the CT scan. This will be exactly 2 months to the date from the last […]

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Thanks to everyone who donated to Holden’s birthday fundraiser! Today we delivered the gifts and most of the money to the Child Life Specialists. Generous friends and family donated: heart pillows, pinwheels, party blowers, bubbles, rumble boxes, train whistles, 40 Holden Bears, snuggle puppies, and $1,100 (plus more money that we haven’t yet received)!

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