August 20, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

Holden’s working on his soccer skills.

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We’ve decided the kids have got to start pulling their weight around here (while mama drinks her morning coffee).

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On this day last year, Grandma captured Holden’s 1st smile. Mommy and Daddy didn’t get to see one until weeks after.

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Using some of the money from the Holden Bears, we bought 10 Snuggapuppies to go to children in the PICU. I bought one for Holden when he was in-patient, and now he’s inseparable from his (we have 2 now, plus Corbyn’s original one). We hope that these bring as much comfort to other babies as […]

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On this day last year it was Mother’s Day. Holden was 3 weeks old, in the PICU, and about to receive his first heart surgery. Dustin and Corbyn brought me fake flowers (bc you can’t have live ones in the icu), and Corbyn picked out some lotion for me the hospital gift shop. We really […]

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Any of our nurse friends, or nurses that follow our page, happy nurses week! Last year we were in the PICU for nurses week and experienced first-hand the care of good nurses. Thanks!

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Today we had a meeting with the surgical team about going forward with Holden’s next surgery. We were able to see a diagram of Holden’s heart based on the heart cath done back in February. Plus, we were given our two potential options of surgery. The surgeons strongly feel that in order to have the […]

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**warning: long post** This is the only picture I have from a year ago today. Corbyn was just about to blow out her diaper so badly that we’d have to do an emergency bath and wardrobe change as we waited for my in-laws to come into town for lunch. My mother-in-law was having chemo that […]

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On the anniversary of the day we became a heart family, this segment from Jimmy Kimmel was brought to my attention:

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http://wvumedicine.org/news/article/wvu-medicine-children-s-doctor-implants-tiny-heart-valve-in-child-born-with-rare-syndrome/

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