June 5, 2020
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

1 year ago today, we brought Holden home from the hospital for his 2nd homecoming. We were so happy, we bought doughnuts for the staff. I wanted to have a celebration in our room.

The 2nd transition was a little harder  than the 1st. Corbyn was a little more insecure, as was I. Corbyn had to get used to having a little brother all over again, and we all had to learn how to take care of a fragile baby who had a huge wound on his chest and back, plus he could barely take 2 oz of milk.

I think about that day often because I was so excited to bring him home. I wondered why they didn’t have balloons and confetti. Now I think about the parents who have gone home with an empty carseat and sadness in their hearts. Those are the families I try to remember to pray for. Also, to pray for the families who are still there helping their babies fight for their life.



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