August 20, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

Before Siblings Day is over, let me just leave these here. I hope these little bunnies stay friends forever.

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In addition to Holden’s cardiology appointment, the bear lady, AKA: Grandma, brought us a box of Holden Bears to hand out/deliver to the first lot of people who ordered. I’ll be contacting you soon. For those who ordered for donation only, I’ll take a picture of all the donations together before bringing it all in. […]

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Holden had a quick cardiology appointment today. His oxygen saturation is 100%, which never happens. He’s usually mid 80s to mid 90s (non CHD people are 100). He also weighed in at 19 lbs, 13.5 oz, and is 28″. Most likely this Friday he’ll have his CT scan, and then Saturday is his BIRTHDAY!!

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Sometimes you’re ready to run off into the sunset, and sometimes you’re ready for a little armpit snuggle for bedtime.

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My kids and their matching bruises On this day last year it was Holden’s due date and we were anxiously awaiting his arrival. Instead, he decided to stay in until the midwife had to tell him, a week later, that it was time. This pic is from the daddy cam as I spent the day […]

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Brother bear got to join his big sis in #Kindermusik with Penni tonight. I was surprised how well he could play the triangle! Also, I couldn’t believe that he just walked up to the giant drum to play with the big kids.

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This afternoon we found out that Holden will have a CT scan of his heart on Friday the 14th (yes, Good Friday). This is the day before his 1st birthday. They’ll have to put him under, so please pray for everything to go well. Thanks!

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#savetheheartbeat

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Holden’s Easter hats.

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