October 13, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

Holden has went from taking a few steps to walking in greater strides! A new development as of yesterday.

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In the past 24 hrs we’ve had a really cool response to Holden’s birthday fundraiser for the PICU! Thanks to all who have ordered or shared! For those of you still thinking about it, don’t worry, there’s plenty of time. Holden says thanks, on behalf of all the CHD kids!

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***original post with fundraiser info and link to Holden Bears*** Ok folks, so Holden’s birthday is less than a month away (4/15). I think I’ve mentioned this before, but I’ll say it again, the 1 year mark is an important milestone for babies with CHD, and so we’d like to celebrate in a BIG way. […]

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Stay tuned to something awesome coming soon, as we prepare to celebrate Holden’s FIRST BIRTHDAY (4/15)! We’re hoping to partner with Holden’s adoring fans to make his birthday great for all the heart babies here in WV! Meet the Holden Bear. You’ll learn more about him tomorrow, once I confer with my tech savvy hubby. […]

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Holden turns 11 months today! We can’t believe that in just a month he’ll be one year old! Holden likes: skimming the walls and surfaces; causing gray hairs by climbing into the trampoline, Corbyn’s chair, and the lower step; dancing to the Trolls movie; “talking;” and laughing when everyone’s laughing. He’s much into exploring and […]

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This is what happens when the girls leave for the store.

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An update on our busy little guy: Holden’s cardiologist called us yesterday evening to say that the surgical team has concluded on their recommendation for surgery, based on the diagnostic heart catheterization done last week. We were a little surprised because we weren’t expecting an answer until Holden’s next cardiology appointment in April; (actually, we […]

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