June 17, 2019
  • 11:37 pm Fall 2018 Pictures
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary

***original post with fundraiser info and link to Holden Bears***

Ok folks, so Holden’s birthday is less than a month away (4/15). I think I’ve mentioned this before, but I’ll say it again, the 1 year mark is an important milestone for babies with CHD, and so we’d like to celebrate in a BIG way.

Anyone who’s been to our house knows that Corbyn paved the way to making our house a play-land, so Holden is doing decent on toys. Our goal for Holden’s birthday is for his adoring fans and prayer warriors to help us make the Pediatric Intensive Care Unit (PICU) a little bit brighter for the kids and babies there– specifically the heart patients (but all can enjoy).

I spoke with my sources on the needs of the PICU. The children and babies who stay there can be there for months and months, and so they need some play things. Furthermore, when recovering from surgery, the staff tries to make recovery a little more fun than the run-of-the-mill procedures.

Down below, I’ll give you a list of some of the gifts you can purchase directly for the PICU. I can get them to the Child Life staff member, or I can check with how you can have it mailed to WVU Children’s Hospital.

However, first I want to tell you about our newest edition: the Holden Heart Bear. Holden Bear is just a little guy, but with a big heart. He’s a handmade crocheted stuffed bear who happens to bear the colors of CHD awareness (red and blue). For the next month or so, we will be selling these bears for $15 and donating the profits to the WVU Children’s Hospital PICU. Another option is that if you want to donate the bear to be given to a child the hospital, we would be happy to do that as well.

For the families who are just finding out that their child has CHD, or for the baby or child who has just had heart surgery, this would be a nice gift for them to receive. For us, we found out about Holden’s CHDs the little kitchenette of the waiting area outside the PICU.

Either way, the PICU will receive the money from the bear, so if you have someone in mind for the bear, by all means, give it to them. CHD awareness is important, and so by giving the bear, you’re spreading the word, AND helping a patient in the PICU.

I’ll be sure to pin this post so that you can find it the top of the page. Be sure to tell your friends. Also, I should definitely mention that this is a 3-person circus– 1 fabulous grandma making the bears, 1 tired mom checking her Google docs and emails, and 1 overworked Dad handling all of the thingys the ladies can’t do. That said, the bears may take 3-4 weeks to make it to your door step. We promise not to take the money and head to Mexico, but please be aware that it won’t be a quick turn around.

Your choices of payment are: by cash or check in person, or snail mail (PM me); or via PayPal. I’ll put the link the end.

OK, so what does the PICU need exactly? Here’s a list:

  1. Summer brand rumble boxes — our cardiac babies like the stimulation — especially when they have chest tubes
    https://www.summerinfant.com/soothevibe
  2. We really have a need, per Dr. Shaw, to have the children using breathing incentives after surgery. Some of our options are a little lame — not as lame as the actual spirometer… but you know what I’m saying. Right now, we have poorly made pin wheels, low quality bubbles, and some pretty cool party noise makers. The noise makers are a hit, but we are beginning to run low. My request would be to either use your imagination and send things that encourage a blowing action or choose from the following things that we have used that seem to work really well: train whistles, party noise makers, (please, no actual whistles) bubbles — we like the giant bubble wand ones, fubbles brand, or jelly belly scented bubbles.
  3. Our patients have teddy bears that we encourage them to hug after cardiac surgery to ease the pain of coughing — since coughing is so important after cardiac surgery but is also very scary and painful… the hugging action of this stuffed bear helps to apply pressure to the wound site and alleviates pain during coughing. The feedback on these bears is that they aren’t helping and children are still not thrilled about coughing. We have discussed wanting a weighted pillow versus the stuffed animal. Other hospitals use these weighted heart pillows (that are able totach to the seatbelt in the car after surgery for comfort while in the car) They are $30 a piece but we would love to have these for our patients to have — we can even all sign it while they’re here and it becomes a keepsake as well. Here’s the link for that:
    http://blessyourheartpillows.com/index.php/2004/01/01/cardiac-travel-pillow/ 

SO, that’s our idea for Holden’s birthday celebration! Thanks for making it this far down the post. We’ll see, maybe I’ll break these asks into separate posts again later, or do a FB Live post with my crazy kids modeling the bear.

For the Holden Heart Bear:

Fill out this form: https://docs.google.com/forms/d/e/1FAIpQLSddHN9Tadyd1IFmHCy2MGX8wIG32vhPksEPk6TEpflzidksVA/viewform?c=0&w=1 

Then, if you want to pay with PayPal, I’ll send you a link via email. Yay, that’s the end of this post!

Meghan

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