February 23, 2019
  • 1:37 pm Halloween Photo Drop
  • 4:35 pm Heartiversary Celebration
  • 4:32 pm Fontan Clinical Studies
  • 4:18 pm Tomorrow is Holden’s Heartiversary
  • 4:14 pm The Runner with the Broken Heart

I found out about this book today. Yes, I will definitely be reading it.

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Holden had his eye appointment this morning. The doctor said that he has “Duane’s Syndrome,” not to be confused with “Dwayne Wayne,” but both guys are pretty fly. So the doctor said he’ll just keep an eye on it and see how it develops. He said that most of the time it stays the same. […]

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This little cub has his ophthalmology appointment in the morning. We’re praying that he’ll need the least intrusive intervention for his eye.

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Later dudes!

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We’re busting out of this joint! Photo cred: Kate Hwang

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He fell asleep in my arms while talking to the urologist. Guys do not like the discussion of their anatomy.

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I guess inquiring minds would like to know what we’ve learned through the procedure yesterday. What we know so far is that it’s not going to be an easy decision as to which surgery they’ll do next. His one side is too small for the double ventricle repair, so it’ll most likely be a single […]

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It’s kind of cool that we ended up in the Captain America room (and the decal was just administered yesterday) bc, in the waiting room, I had just been saying that he was my favorite of the Avengers (the movie was in TV). He’s my favorite bc he always seeks to do and say what’s […]

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Holden finally got a bottle and a veggie pouch about an hour ago!

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I’m sorry for the long delay. It’s been an eventful time since he got out of the cath lab. In recovery we had a slightly scary moment just as I (Meghan) sat down to give him pedialite. However, he’s stable now and our current issue is just that he’s uncomfortable and hungry. Of course he […]

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